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Offline AEckerman

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74 05/25/09 21:44:52 07/03/09 19:33:17 09/12/04
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07/10/08
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My Bio

My husband and two children have VHL. My daughter has had two pheos, one at the age of 8 and the other at the age of 15. My son, who is only 10 has had a total of 8 pheos - three in the left para-aortic region when he was only 4, and five on his adrenals. Last year, both kids had pheos at the same time! It has been an arduous journey, but we know without a doubt that we can do all things through Christ who strengthens us!

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